It feels like a full fledged onslaught. The battle for my mind is raging every moment that I am present to my actual feelings and thoughts; and if I’m not present, then I’m just plain numb.
We heard these words of doubt last week: “I’m stumped.”
From a doctor, especially your child’s doctor, those are words you never, ever, want to hear. She looked sad. She looked tired and concerned. She has labored for us and with us for well over a year, and now, we are at the end of her expertise. The end of her possible answers.
“That’s what specialists are there for,” I heard her say. And I wonder if she wasn’t just saying that for us, but for herself. To remind herself that it’s okay that this time she didn’t have the answers we were looking for. In fact, we seemed at a loss for answers at all.
We have run out of non-invasive options. Our next right thing is to head to the pediatric gastroenterologists at Children’s Hospital, and hope they can help us find an answer. A diagnosis. Something, that will help our baby girl feel well more than 50% of the time.
The last time I was at children’s hospital, I stood as a witness as one of my best friends received the news that her 18 month old daughter had cancer. What had seemed like a fractured ankle from a crib injury ended up quite different than any of us could have anticipated. I can’t say I’m excited to go back there.
No solutions feel very comforting right now. Even if it all goes perfectly “well.” Sometimes the diagnosis makes things a lot better, other times, it’s the devastating last blow that seals just how much “worse” it all is.
And even if it’s not worse. Even if it’s all fine; I’m not excited to put my daughter under extensive and invasive tests. I don’t want to watch as she fades from consciousness from anesthesia. I don’t want to let anyone wheel my baby away on a gurney. I don’t want to put her life in any one else’s hands. As I looked at the faces of the pediatric gastroenterologists on the Children’s Hospital website, I just kept thinking to each face, “Do I trust you to take care of my baby girl? How about you?“
The truth is I trust no one. And I know enough now to know that I can’t necessarily even trust myself: I mean, I haven’t been able to keep her healthy have I? No matter how much I slam down the control all around us and our life in attempts to keep her well, it’s never enough. I’m sure there’s been a time more than once over the past year and a half, when I’ve encouraged her to eat something that ended up making her sick. I try not to dwell on those times, but sometimes I do.
All I know is that I know her, and I love her. I remember when she was one-year-old she smelled to me like butter, and sugar cookies. That when she’s happy she doesn’t always smile, but her face is smooth and peaceful. She doesn’t always show her pleasure in the demonstrative ways you’d expect from a five-year-old. And she’s always been that way. I know that she’s happiest when she’s making art. That she’s an extrovert that needs her alone time. That she is more thoughtful and capable of compassion than I often even give her credit for.
A little over a month ago, I found myself making an hour long drive with a car full of sleeping babies. And through the gentle words of a scripture lullaby CD, I heard an almost audible whisper:
If you never find the answers, will you still trust me?
And through the tears, my whispered answer came, “Yes.”
The challenge now is one of memory: remembering the peace that comes when I choose to rest in the sovereignty of God. Remembering and keeping before my consciousness moment-by-moment, that God knows her and loves her even more than I do. That He has not abandoned her. And challenging as this thought is, that He has good for her, for us. Even here, smack dab in the middle of this pain; this terrifying unknown.
What that good might be? I don’t know yet. But I’m on the hunt for it. I’m ravenous. I’m parched. And I need to taste that spring of water that never leaves you longing for more. Especially here in this desert season, as I feel myself walking towards this valley of shadows and death. Come near to me Lord Jesus.
I believe He will.
If you too are walking through a season of suffering, or uncertainty, or both; I’m so glad you are here. I hope to create a place here where we can Cultivate a Fruitful Life, and I know that paradoxically, God often does His best work in the soil of suffering. Will you let me kneel down in the dirt next to you? CLICK HERE to sign up.
Praying for you Dear Reader. I know you’ve been through a lot. I have too.
But together, let’s keep before us, the truth of Romans 8:28, “And we know that for those who love God all things work together for good, for those who are called according to his purpose.” (ESV)
If you are planted in the soil of suffering like I am right now Dear Reader, then maybe, just maybe, God is in the middle of cultivating fruit.